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Amber J. Tresca

IBD

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The Difference Between Ulcerative Colitis and Crohn's Disease

Saturday May 18, 2013
Ulcerative colitis, Crohn's disease...what's the difference? Is it really that important to know which form of IBD you have? Yes, because the differences are major and could significantly affect treatment decisions. However, it's not always easy -- even for highly trained physicians -- to distinguish between these two conditions. Learn about the differences between Crohn's disease and ulcerative colitis.

World IBD Day!

Thursday May 16, 2013

World IBD Day is Sunday, May 19th. I encourage you to spread the word about IBD in whatever way you feel comfortable. That may mean

  • Talking to your friends and family about IBD
  • Getting co-workers involved in a Crohn's and Colitis Foundation of America (CCFA) Walk or other fundraiser
  • Volunteering your time to help someone with IBD who is struggling.
If you are using Twitter, you can follow the World IBD organization at http://www.twitter.com/WorldIBDDay, and if you're tweeting about World IBD Day, you can use the tag #worldibdday in your message. The CCFA encourages you to use the logo at left to publicize the day on your web site or your social networking profiles.

New Drug Approved To Treat Ulcerative Colitis

Wednesday May 15, 2013
Janssen Ortho Biotech, Inc. announced that it has gained approval from the Food and Drug Administration to market the medication Simponi for the treatment of moderate to severe ulcerative colitis. Simponi (golimumab) is an anti-tumor necrosis factor (TNF)-alpha drug, similar to other drugs approved in recent years to treat IBD. It is currently indicated for use in adults who have not responded to other drug therapies (such as aminosalicylates, corticosteroids, azathioprine, and 6-mercaptopurine).

Simponi was studied in the Program of Ulcerative Colitis Research Studies Utilizing an Investigational Treatment (PURSUIT) clinical trials. In the trial, patients who were treated with Simponi, showed improvement with compared with patients who took a placebo. The effects of the drug were studied through 54 weeks of treatment. Side effects included upper respiratory tract infection, injection-site reactions, and viral infections.

Simponi is also approved for moderately to severe rheumatoid arthritis (RA) with the medicine methotrexate, psoriatic arthritis alone or with the medicine methotrexate, and ankylosing spondylitis.

Humira Frequently Asked Questions

Tuesday May 14, 2013
Humira (adalimumab) is a drug that was originally used to treat rheumatoid arthritis. It is now also approved to treat Crohn's disease. You may wonder how one drug can be used to treat two such different conditions. The reason is that Humira blocks the compound that is thought to play a role in the inflammatory process of both diseases. Learn more about this drug and how it works for Crohn's disease.

More About Humira:

Is Crowdsourcing Your Symptoms The Next Evolution in Medicine?

Wednesday May 8, 2013
Jigsaw

Would you be willing to crowdsource your medical records on the chance that someone in the crowd might be able to diagnose your symptoms? Crowdsourcing is polling a group of people, typically on the Internet, in order to meet some kind of end point. It could be a financial endpoint, where people pledge money to fund a project, or it could be a creative endpoint, such as when people submit their photos with a product that might be used in an advertising campaign. Crowdsourcing is incredibly useful -- and cheap -- for companies who are looking to take their marketing campaigns in a new direction. It is also helpful for entrepreneurs who need some start-up money to fund their big idea. But does crowdsourcing have a place in medicine?

If you have a chronic illness, you have probably already used crowdsourcing. Posting on a message board about your symptoms and asking for advice is one example. Even polling your Facebook or Twitter friends about anything from your dinner plans to your symptoms is a form of crowdsourcing. Those of us with inflammatory bowel disease (IBD) often have difficulty finding information on the more esoteric aspects of our disease, and tend to seek out others with IBD who might offer some insight. We are constantly crowdsourcing, and have been doing it since the early days of the Internet.

What if you could, for about $200, post your signs and symptoms for a group of interested parties to poke through? Who are these people? Well, they could be anyone. It could be an MD or someone with medical experience, or it could be someone like me -- a patient "expert" who has an interest in medicine. A startup called CrowdMed is betting that you will want to take part, either as a patient or as an unpaid "medical detective."

I'm not sure at all that this is the direction that our medical system should be taking. We are already crowdsourcing -- any search engine search is full of results of people looking for answers about their signs, symptoms, and medications. And the truth is, much of it is not helpful, and I've seen incorrect information, to the point of being dangerous. When information is not moderated in any way, which is common, quality help from "the crowd" is going to be hard to find. It's a needle in a haystack. I don't think putting a wrapper around medical crowdsourcing is going to make a difference.

We've all heard stories of someone who has gone undiagnosed for some time and who gets a clue to their diagnosis from an unexpected source: a friend, family member, even a stranger. It does happen. But how will your doctor feel if you walk into her office, telling her that a someone you've never met on the Internet thinks that you have arthritis. Or fibromyalgia. Or celiac disease. I know my doctors, and I have some excellent ones, wouldn't be impressed.

What do you think? Would you be a patient in this strategy and submit your $200 and your medical records? Would you be willing to be one of the diagnosticians? Or are you, like me, lamenting the idea that this is where our medical system is heading?

Probiotics for Pouchitis?

Friday May 3, 2013
J-pouch surgery can be a lifesaving surgery for some. In most people, a j-pouch can increase the quality of life for people with ulcerative colitis. There are, however, some cases where a j-pouch can bring its own set of problems. The most common problem faced by those with j-pouches is a recurring condition called pouchitis. Pouchitis causes symptoms of abdominal cramping, bleeding, and fever. Some people have pouchitis once, treat it, and never have a problem again. But a subset of those people have recurring bouts of pouchitis that can lead to distress and a decreased quality of life. There is some evidence that probiotics (supplements of live bacterial cultures) may be helpful for pouchitis. Should you take probiotics for pouchitis?

More about surgery for ulcerative colitis:

What is a "Normal" Bowel Movement?

Wednesday May 1, 2013
Normal. Such a strange word. Nor-mul. Say it long enough and it loses its meaning. If it ever had a meaning in the first place. Many of us are comforted by "normal" when we're talking about our health, our children, or even the weather. A "normal" red blood cell count or biopsy is good news. But in some cases, the definition of normal gets fuzzy around the edges. One of those topics is bowel movements. Most people take their healthy, normal bowel movements for granted until they're not normal or healthy anymore. In some cases, "normal" changes so slowly over to "abnormal" that we're not sure what is going on anymore. The fact is that there is no one definition of a normal bowel movement. There are actually gradations of normal, and every person is going to have different bowel habits. What is a "normal" bowel movement?

More about bowel movements?

The Ultimate Bathroom

Wednesday April 24, 2013
People with inflammatory bowel disease (IBD) often spend a lot of time in the bathroom. During a flare-up, it sometimes seems like a waste of time to actually leave the bathroom -- you'll just need to come right back. If you're going to spend so much time in that room, shouldn't it be comfortable? I have put together my list of what would be in the ultimate bathroom. See what fixtures would make your bath the best room in your house.

The Face of IBD

Monday April 22, 2013
Faces

While inflammatory bowel disease (IBD) is a perplexing group of diseases that tends to be difficult to diagnose and treat, researchers have collected a significant amount of information concerning the genetics, distribution, and contributing environmental factors for IBD. Who is a typical patient with Crohn's disease or ulcerative colitis? Find out exactly who is the face of IBD.

Short Health-Related Videos

Friday April 19, 2013
Here at About.com Health, we want to provide you with the information you need to take control of your health. Not only do we have articles on almost any health topic you could need, but we also have videos. The great thing about videos is that you get another way to access information about a concept, which can help you better understand a topic. The videos across About.com are created by experts in their fields, and in Health, many videos feature physicians. I have collected several videos that people with IBD may find interesting and informative. Enjoy!

See IBD Videos

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