Friday April 18, 2014
Now that spring is here in the Northern Hemisphere, and snow is melting across the temperate areas, it is now becoming time for the spring and summer charity walks. Many inflammatory bowel disease (IBD) organizations (such as the Crohn's And Colitis Foundation Of America [CCFA]) hold runs and walks in order to raise money. The funds raised are put towards everything from IBD research to public education efforts. In the case of the CCFA, walks are held all spring and summer across the United States.
The thing about participating in a charity walk is that if you don't walk regularly year-round, it might be a challenge for you when you do a charity walk or two during the summer months. Not that it is impossible, and not that you shouldn't walk to in support of the causes that you believe in. But, you will want to start thinking about getting your body ready to walk as soon as you possibly can. Even if you're reading this a few days before your walk, there is still something you can do. But, ideally, you are thinking of getting ready for your walk a month or more ahead of time.
At whatever level you're starting, our Walking Expert, Wendy Bumgardner (AKA Walking Wendy), has her Once-A-Year Walker's Survival Kit just for you.
Wednesday April 16, 2014
April 16 is National Healthcare Decisions Day
. This is a day where adults are encouraged to plan for their future care by providing information about their wishes for their own healthcare. Having these plans in writing helps healthcare providers to care for a patient in the way that the patient prefers.
Why is this day important to you? With chronic conditions such as IBD, healthcare decisions may need to be made quickly. When patients provide that information in advance, healthcare providers can make choices for the patient that are in accordance with the patient's beliefs.
I encourage you to have an advance directive. I also hope you will speak with those closest to you about your wishes for your care, particularly as they relate to issues surrounding your IBD. This can include decisions about medications, surgery or surgical complications, and mental health care.
More about talking with your family about healthcare:
Monday April 14, 2014
Wanted: Kids between the ages of 11 and 17. Do you ever feel like you are the only teenager with an ostomy or j-pouch? Do you have questions and concerns that no one can help you answer -- because you don't know anyone else with an ostomy? Here is your chance to meet other kids at the 2014 Youth Rally
who are just like you, and have a great time doing it!
Friday April 11, 2014
Sleep can be a huge problem for people with IBD. And not just because of waking every few hours to go to the bathroom, although that's a large part of it. There may also be abdominal pain or night sweats. Some people find they suffer from insomnia because of drug side effects, or anxiety and restlessness. Working on developing better sleep habits for yourself can go a long way towards mitigating these problems that disrupt your sleep. Sleep is important, and most of us don't get enough, therefore it is worth taking the time to clean up sleep habits and get into a better pattern. What can you do to help yourself get restful sleep?
More on IBD and Sleep:
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